A day for thinking about death

Today is Good Friday and the year is 2020. There will never be another Good Friday like this. I hope. Our churches are closed because of the Coronavirus and we are all trying to find ways of keeping the Triduum at home. Some have created prayer spaces with symbols that mean something, some have watched a hundred videos on Facebook and YouTube and some clergy have felt inadequate at the expertise of others. Why didn’t I learn all this IT stuff before the lockdown began? Why didn’t I prepare better? And if someone said that to me I would tell them that doing your best is just fine. But today I’m not hearing it. Today I’m grumpy, and in a bad mood, and I’m missing my Good Friday.

From the first year that I became a Christian Holy Week has been so very special for me. The sights, the sounds, the smells all take me to that place far, far away and long, long ago. Since being ordained I have tried faithfully to share some of that life-changing week with my little flocks. Through Stations of the Cross, art, fasting, meditations, candlelit Compline, preaching the Passion, the Veneration of the Cross, foot-washing, shared meals, prostrating at the Garden of Repose, and the joy of Holy Saturday and cleaning the church and preparing it for Easter Day. I love Holy Week. Yes, it makes me cry. But after the tears come Hot Cross Buns. And you know you have to go through the agony to appreciate the joy of Easter.

Today I’ve been thinking about death. My own death. I am ‘shielding’ at the moment which is the strictest kind of self-isolation for those who have an illness that puts them at high risk of catching the virus. Some people have one illness which puts them at risk. I have a few! I have COPD (lung disease) and Asthma, Diabetes, Liver disease, and I’m on steroids which lower my immune system. So I am being very careful indeed about staying indoors and washing everything over and over again. But there is still a chance I could catch it – when I’m at the doctor’s for blood tests, or at the hospital as I was on Monday. And I know that if I do get Coronavirus I might not survive it. For once I’m not being dramatic, for this is my reality. Usually I am a glass half-full kind of person but today I’m not. Because today, Good Friday, is a day for thinking about death and I can’t help but think of my own.

Many years ago, at the beginning of my ministry, I led an evening on Preparing Your Own Funeral and I’ve repeated them time and time again. It is a subject I am passionate about. I’ve met families who have not even considered that their parent or loved one might die and are totally unprepared for thinking about hymns or burial or cremation or what readings or any of the questions a priest might ask the next of kin. Prepare your own before you go! I’d shout. And people did. And I did. And I told my son where to find it. And I showed him where all my papers are. I could relax. All was in hand.

But things have changed. My hope for a full Requiem with clergy in black vestments and twelve favourite hymns just won’t happen if I should die while restrictions are in place. It may be my boys and a priest at the Crem. It may be short and, I’m sure, sweet but nothing as I’d planned and hoped. And that’s okay. To be honest, I think my boys might prefer it that way.

Speaking to a friend this week who is also ‘shielding’ she told me her GP had phoned to check that she was taking all the instructions seriously to the letter, and did anyone have Power of Attorney, and did she want a DNR put in place. She was shocked and upset. She hadn’t thought about that. And I haven’t either. I know I hope for a good death, a happy death but I also know that not everyone gets that. My mother didn’t. My father didn’t. I don’t want to be resuscitated if there’s no hope. But I haven’t done anything about that yet. I don’t want to die alone or with a stranger holding my hand in their gloved one. I’m not frightened of dying but I am frightened of the physical aspects of it and the emotional ones. Then I listen to the Passion story again and again and wonder why I’m afraid and feel rather silly.

So that’s where I am this Good Friday. I know it will pass. But this is where I am today. Thinking, probably over-thinking, about death. It has been a struggle this Holy Week. I pray that Easter will make it better.

The Prisoner of Buckstone

It seems that it might be time to revive the old blog. However,  don’t go expecting nice pictures and thoughtful prose. The reason?  My study where the computer is is freezing,  my new laptop doesn’t work,  so I’m doing this on my trusty tablet using Swype so there will be spelling mistakes and nothing fancy.

Now,  why the blog revival?  The world is in the midst of a pandemic called Coronavirus. We are about 6 weeks into it here in Scotland and I have been housebound since 3 March 2020 as I had a chest infection at the beginning and was told to self isolate. No warning that it might go on for a while.  No time to stock up on stuff. I had to get cover for church services and turn my ministry into the phone kind once I was feeling a bit better. My son lives with me so he became full time carer,  shopper, messenger, along with all the rest he does for me at home. I started online supermarket shopping and with reasonably good grace we got used to being home all day.

Things got worse. The College of Bishops started issuing guidance to keep us safe during the crisis. First it was no intinction at communion (yay!) then nobody to receive the chalice except the priest,  no shaking hands at the Peace, no biscuits after the service, and finally our churches had to close for who knows how long?  That was when clergy up and down the land had to rethink ‘church’. And quickly. If church isn’t the building,  what is it?  And soon there were priests popping up on Facebook saying Morning Prayer in immaculate studies while I wondered how long it would take to find a tidy yet erudite bookcase to sit in front of and look holy and thoughtful. That’s when I discovered my laptop wasn’t working so ditched that idea.

The doc told me i had to begin 12 weeks of self isolation which would take me to June as i have a few health issues which make me high risk. I had 1 wedding in June and 2 in July so contingency plans had to be made. One of my little flock was seriously ill in hospital and I couldn’t visit. I enjoyed phoning my congregation,  when I could get them in… these lovely elderly people were not going to stop going out until the day came when the government put us into lockdown. That’s where we are now, only allowed out to shop for necessities or short exercise.

On Sundays we gather for  a Spiritual Communion, me in the rectory with a candle, a cross, and my home communion set. During the week I email or post the service sheet out,  along with a weekly newsletter,  and on Sunday we all say the service ‘in communion’ with one another. The same folk are late. We all miss the hymns. It’s all over rather quickly. But feedback has been good.  For the past 2 Sundays Bishop Mark and Bishop John have done an online eucharist which we can watch on Facebook or YouTube. So few of my congregation are on social media so they are missing out on that,  and it’s also why I haven’t done any services myself that way. I feel that I should. I don’t know how but I could learn. I’m living with that guilt at the moment.

Social media is my lifeline at the moment. I can’t get out.  Nobody can visit me. I’ve not been well. I’m an extrovert who needs people around me for energy, for stimulation. But i have a good circle of friends who will chat online when i need it. I have low days,  very low days,  and good days.  Like everyone.  And we’re told this is normal. I’ve stopped watching the Prime Minister’s daily bulletins because they are bad for my mental health. I can’t shop online any more because the whole world is doing it and supermarkets are doing the best but just can’t cope with how to prioritise the most vulnerable. That can take up a few hours each day just phoning or searching online and it does nothing for my mood. But heh, we’re not starving as many are. I need to keep remembering that.

Oh that’s enough for first isolation diary. Let’s see if I can upload this… more to follow on plans for Holy Week…

Look after yourself

Three weeks ago I got a cold. Not flu. Just a stinky cold with a runny nose, a lot of sneezing and then some coughing too. I’ve been put on steroids long-term for polymyalgia rheumatica so that may have helped lower my resistance to germs and this nasty virus really went to town. And then the coughing began. All night long, I coughed. Like a dirty old man, I coughed. It was only when sitting upright and perfectly still that I managed more than a minute without coughing. This made for long nights.

But colds happen. And we work through it, right? We carry on regardless, sipping our Lemsip, swallowing the pills, and we keep on passing it on to others because it doesn’t seem right to give up at first sight of a mere cold. But after three long nights of not sleeping and when the asthma/COPD had kicked in I gave in and had to phone the out-of-hours service NHS24. It was 2am and they were jolly nice and sent a lovely Irish doctor out to bring me a nebuliser which has done the trick in the past. Its the equivalent of 25 shots of Ventolin via a face-mask and is like breathing fresh mountain air but more invigorating. (That’s probably because of the adrenalin in it which can make me a bit jittery jangly.) The nice doctor also got me started on heavy duty doses of steroids and told me to get in touch with my GP if I thought I needed antibiotics. So far, so good.

And I carried on working. A bit. I did a wedding rehearsal and some admin and a quick visit to the church party before I finally gave in and said I couldn’t do Sunday. This was mainly because my voice was going and the cough was not improving. So my dear sister took me to the doctor on the Monday because she didn’t think I should drive myself. She was probably right. My GP took one look at me and sent me to the hospital with a letter. “But I probably just need another go at the nebuliser!” I croaked. He thought they ought to make that decision.

2016-11-07-16-14-03The hospital were lovely. They did indeed give me a nebuliser. And another. And another. And then decided I really ought to stay in and have them through the night. This was not in my plan. I had a wedding coming up at the end of the week which was very important to me (and to the happy couple too, it has to be said). I had things to do. Advent liturgy books to prepare, AGM to plan, pew sheets to do, a talk on art to go to, services to take, and a whole host of other things. But no, I was to stay and breathe fresh mountain air and take lots of pills and get better first. Only I didn’t. Another night in hospital. And by this time I had horrendous pain when I coughed from strained muscles so was put on some nice painkillers too.

Now let me tell you about the ward I was on. I should have been transferred to the Respiratory Ward but they were full. So I was kept on the Medical Assessment Unit which is really a temporary ward until people are moved on. It is next to A&E and goes like a fair. In my ward there were 5 beds and I was the youngest by a considerable mile. And they came and they went and I prayed through the long nights for M who was bewildered and needed to organise everything on her trolley a lot; for E who had just been told she had cancer again and her pain was just awful; for M2 who slept a lot with her mouth open and I kept thinking she’d gone; for M3 who came and went so quickly I never found out what was wrong nor where she went; for others who’d lost their appetite and not even jelly would tempt them. I watched them all and their visitors and we all smiled when M’s granddaughter entertained us with songs and innocently amusing questions. My son came at night after work and I was sharp with him because he took so long coming. And I apologised to him too.

And then another visit from a Consultant who suggested a stay until the weekend. I explained about the wedding in 2 days time and how I really couldn’t cope with staying any longer and not sleeping. It was very busy and noisy at night. Reluctantly he agreed to let me home into the care of the Community Respiratory Team who would come in every day to check me. And I got home. And my sister shopped for me and the CRT came in and measured my oxygen levels and brought me my own nebuliser to use 4 times a day. And my congregation told me not to worry about services and that they’d cover and I should just get well enough for my friend’s wedding.

2016-11-12-18-05-05On the day of the wedding I knew I couldn’t drive to Falkirk but the bride’s witness came and gave me a lift. I took the nebuliser and painkillers just before the service. My voice was croaky but the microphone picked it up sufficiently to be heard. The service was by candlelight and the church was full. The temperature rose and rose and by the time we got to the end of it I looked like a small damp rag. But we made it! Yay! I even made it to the reception for one and a half courses before the nice woman who’d given me a lift came and told me she was taking me home again. And the next day I slept. And slept some more. And someone else took my service here and that was just fine. And still I had no voice.

This past week has seen some improvement. I still have no voice but it is getting a little stronger each day with the help of gargling. (If you are on Facebook you could entertain yourself by watching them.) I do an hour in my study and then I rest for two. I’ve had to cancel a special Remembrance Day service I’d planned and was so disappointed about that. I’ve had to cancel meetings and appointments. I’ve been frustrated at being off sick for so long and now I’m getting bored which is probably a sign that I am getting better. The physio from the CRT say my lungs are still crackling but I am getting better so everything is now being reduced gradually. Today I managed over an hour at our Church Fair and everyone was very understanding. Tomorrow I won’t take the service but I shall chair the AGM with a croak and a prayer. And I’ve knitted 4 eternity scarves which made £20 for the sale. (My hands were too shaky to paint and I can’t concentrate on reading.)

So the moral of my story is… look after yourself. Right at the beginning of any kind of cold or virus, stay in and care for yourself. Don’t soldier on. Don’t spread it around. Don’t think you can do it because the payback may be more than you can bear. Be good to yourself.

And thank you to all who’ve looked after me.

How much do we care for our elderly?

D is 90. She is a Franciscan tertiary who lives alone simply and with a good network of friends. She is very independent and sharp as a tack, with few health problems considering her age, and volunteers regularly at a centre providing care for the elderly. (She didn’t think of herself as elderly!) That is, until a few weeks ago when she came downstairs in the morning and opened her curtains, got a sharp pain above her hip and fell, hitting her coffee table on the way down. Luckily she had her phone in her dressing gown pocket so was able to call a neighbour, who phoned an ambulance and left her lying until the ‘experts’ came. She was taken into hospital and admitted to the Acute Assessment.

Her next of kin phoned a church member so we knew about it straight away and I popped in to see her the next day. (No visitors, she’d said, because she didn’t want to be a nuisance but I told her I didn’t count.) They said she was a bit dehydrated but they sorted that quickly but nobody seemed to know why she’d fallen. Without doing an x-ray they were certain it was not a broken bone so they treated her with painkillers. Physios came and helped her with some exercises and tried to get her walking but she really had quite a lot of pain and had lost her confidence. With the zimmer she could manage but didn’t cope well with a stick. So they kept her in for about a week before discharging her with a zimmer. She still didn’t know what was wrong with her.

A friend came to take her home to a dark and cold house with no food in the fridge. Since then (over two weeks ago) she has seen a nurse every morning who comes to put a patch on her hip for pain. That’s it. Until 2 days ago when a trolley arrived she was unable to feed herself because she had no way of carrying food or drinks from the kitchen to her seat and couldn’t stand for any length of time in the kitchen. D’s neighbours and friends had to come in several times a day to make food for her. The hospital had also arranged for a cushion which came with the trolley. It was covered in plastic and sweaty to sit on. D has had no other help.

When I was visiting yesterday I discovered that D has not had a shower since she got out of hospital because she is unable to climb into her bath. She has had to make do with a wipe down herself. She still has awful pain and is stuck sitting all day on a cushion on a low couch watching TV. She has never been given exercises to do at home, nor does she know what is actually wrong with her. No x-rays, no scans = no diagnosis.

Then this morning I heard on the radio that the NHS is cutting back on unnecessary treatments which cost money. One of those unnecessary treatments is x-rays for lower back pain. And I bet if you’re 90 you’re even less likely to get one.

holding-hands-elderlyD doesn’t appear to have a Social Worker, Occupational Health worker, Care assistant, anyone to whom she can phone and ask for help. The nurses who come in the morning (seldom the same one) only have been told to put her patch on and that’s it.  Her GP comes back from holiday tomorrow so she is going to try her. We’ve helped her write down all the questions she needs to ask. Like: who will help me have a shower? can I get a chair to help the pain? are there other aids which might make life easier for me at the moment? what is wrong with me and how can I help it improve?

D is fortunate in a way. She has a community of friends from church and the Franciscans, as well as some super neighbours who can pop in and do shopping and keep her company. What she really wants is her independence back. And she wants to know what’s wrong with her and will it get better. It’s the not knowing that causes worry and sleepless nights.

But what about the other folk, I’m left wondering? What about those without communities of support? What about the forgotten ones sent home from hospital with no way of feeding or bathing themselves? More cutbacks means less care and more vulnerable people. Its just not good enough. And it makes me very sad and more than a little angry. I love the NHS, I really do. I’ll defend it to the end and I’d pay more taxes if I knew the money was going to the vulnerable and not management. But why are we not getting something as simple as communication right? I know there is help out there but I just don’t know how to access it for D.

I did a funeral on Saturday for a lady who was ill at home for a long time, cared for by her husband. He has about 30 items they have been ‘loaned’ over the last year to help her: a reclining chair, toilet support, cushions, hospital bed, rails, grabbers etc. He wants them taken away now for someone else to use. They can’t say when that will be. I’m tempted to hire a van and just get over there and fill it up for D.

New Year Revolutions 2015

Jumping on the blogging bandwagon of making some New Year resolutions (though Revolutions sounds more fun) for 2015. You should know that I am not very good at keeping them, however. Last year, or was it the year before, I made a resolution not to buy any more books until I’d read the all the unread ones I have. That lasted until May. And I still have a 6ft bookcase outside my study which is positively bulging with unread books. So that brings me to my first revolution:

books and coffeeReading
This year I shall put in my diary some time for reading. For the past few months it has taken me 4 weeks to read our book group offering and occasionally I can fit in another one but I read two pages in bed and fall asleep. As for reading theology and books to feed sermons… pathetic!  So this year I shall put some time blocked out in my diary and not feel guilty at all about reading. Which leads me neatly on to my next one…

Sabbatical
From 14 April to 14 July I shall be taking my first Sabbatical. 12 weeks of time away from the parish to restore, refresh and renew myself and ministry. For years I’ve wanted to put together a Lent Book/Blog using a piece of art each day with a meditation. I am a visual person and really look forward to gazing at lovely paintings and matching them with meditations for the 40 days of Lent. I’ve taken some advice and have been told New York and Washington are the places to go to see great art so that’s where I’m headed. Then perhaps some time in Gladstone’s Library for putting it all together. My Bishop tells me there must be some rest in there too and I’m not arguing with that. Of course this is all dependent on getting some Grants to help finance it so if you know of anyone who can help…

Health and Fitness
I know! Can you believe I even have considered including this? Last year was not a great year for health but was much improved when I was sent for Pulmonary Rehab at the hospital. 6 weeks of exercise and diet left me feeling so much better and my plan is to carry on with that in the new year. I’ve been referred to the local gym and some lycra may even be purchased. Steady, Ruth! I also have liver disease (of the non-alcoholic kind, she quickly added) and was given a scary warning about losing weight (not before time, I may add) so I need to continue to eat cottage cheese and resist all cakes and biscuits on church premises. I will need your help in this, so if you see me reaching for a wee slice of malteser cake you have permission to smack my hand.

Miscellaneous
I’d like to say I will spend more time keeping my study tidy and organising it better, spending more time visiting family and friends, learning how to crochet, avoiding wasting time on stupid computer games, spending less money on purple Purple-Leather-Handbaghandbags (how many purple handbags does one woman need? really?), making time for mutual support with clergy friends, tidying up my computer files which have been desperately needing doing since I got new computer and can’t find anything, blogging more on topical issues, not leaving my tax return till the last minute, etc etc. I’d like to do all these things but suspect they are an annual hope which take more effort than I’ve ever given. Maybe this year… Oh, and stopping smoking again. Yeh that.

In which Ruth goes to the gym

Yes, I bet those are words you never thought you’d hear from my lips. For the past six weeks I have been going to the gym. Gasp!  But not just any gym, oh no. This is a very special gym – a gym for old fat and skinny folk who have lung problems. I was referred by my doc some time ago because I have asthma and COPD (Chronic Obstructive Pulmonary Disease) which gives me lots of chest infections and breathing problems. When the physio suggested that this gym might be a good idea, I laughed. I laughed and laughed and coughed. Me at a gym? And you’re laughing too at the very thought, aren’t you? I can sense it.

Gym cartoonI use my car for everything, even driving about half a mile to get to the car park in town when anyone could walk there in minutes. In my defence this is because cold air and wind sets me off coughing and is bad for asthma and being so fat makes it exceedingly hard work. And then it becomes a vicious cycle – fat people don’t walk, right? And waddling is never attractive. But I was assured by the phsyio that there would be other people at the classes in the same boat – we’d all be wheezy, clutching our inhalers, and many would be overweight because of the lack of exercise and overuse of steroids.

So on 4 November I set off for the hospital gym clutching my bottle of water in ‘comfortable clothes and flat shoes’ with more than a little apprehension. The gym part would take up an hour and then we’d have a talk for half-an-hour when the second group would join us and then they’d stay on for the gym when we staggered off to our cars, wobbling on achy legs and wheezing like old crones.  I looked around my group and discovered that I was in fact the only overweight one apart from one man with a big belly which might have been a hernia. (The second group had loads of plump ladies, many of whom brought their own oxygen tanks, which beat any attention seeking I might have been planning.) My group was full of painfully thin old women with deep husky voices and smokers’ coughs. I was the youngest by about 20 years. We were nervous and shy with each other and very unsure of what this gym was going to entail.

Ruth the Physio had us sit in a circle for warm-up first. Tapping toes, stretching lunges, rolling of heads and marching on the spot and we all joined in awkwardly. This was all accompanied by disco music (which I will never hear again without starting the warm-up routine) and soon we learned who had rhythm and who did not. We also discovered that some just couldn’t do the exercises on the spot but traversed across the circle. Nobody got smacked in the gob which was a miracle really. After warm-up, we were shown the 14 exercises we would be expected to do each session: lifting weights; cycling; squats; steps; treadmill; wall presses; goalie (the most embarrassing one where you stand with your back against a wall, crouch and put your hands on your knees and then stretch out to the right as if catching a ball, back to knees, and then repeat to the left sliding up and down the wall as you go); etc. We were to begin with 10 of each and 2 mins on bike and treadmill and mark them on our sheet. On duty were Ruth the Physio and a scary pulmonary nurse who kept an eye out for bad wheezing and were ready to gently encourage us.

I began the 12 sessions with the remnant of a bad chest infection and was coughing like a dirty old woman. Several times I had to stop and have a good old cough and splutter and that’s when I learned that exercise is good for getting phlegm up. Yes, phlegm. A revolting word for something which we all get from time to time. I feel as if I am now an expert on the wretched stuff. But by the end of the first session I had managed all 14 exercises and had time to sit down and wheeze before our hour was up. I had quite a sense of achievement.

Then two days later we had to do it all over again but this time we had to increase the exercises a bit. We tentatively spoke to one another getting to know what our health problems were, and helped one another figure out how the bike worked and how to lower the seat. We stopped being quite so embarrassed about swinging our arms and sitting down and standing up at the same time. We learned that some of the weights and poles were heavier than others and all opted for the lightest ones. We learned that Jessie was too scared to go on the treadmill and preferred to walk up and down the gym floor. We encouraged one another, asking how long we’d managed to cycle for, and comparing heart rates.

The talks were all different and aimed at our health problems, and some were more useful than others. We learned about Gym smugour lungs and how they work or don’t; about diet and stopping smoking; about benefits and deep breathing; about exercise and relaxation. We took home DVDs with Angela Rippon encouraging us to exercise from our armchairs and CDs with a man speaking gently to us encouraging us to chill out. (No, I have never played the DVD nor listened to the CD but that will come as no surprise to you.)

After my first session at the gym I had an appointment in another part of the hospital for a check-up for my liver. I have something called PBC (Primary Billiary Cirrhosis) which was picked up in a blood test 5 years ago and for which I take four enormous pills every day and mostly ignore except for annual blood tests. But at this appointment I had a new kind of scan and found out that my old liver is not very wobbly at all. Wobbly livers are good, it would seem. Mine was like a lump of tough old gristly liver and riddled with fat. This is serious, you have NAFD said nice consultant. (I think this is Non Alcoholic Fatty Disease – NON Alcoholic, please note!) You must lose 4 stone. 4 stone! Just like that. (Not before time, I may add, but it still came as a bit of a shock.) However, it did seem fortuitous that I should be going to the gym at the same time as starting the radical diet.

And now here we are in my last week of hospital gym approaching my 12th session. I now cycle 10 mins and stride out on the treadmill with a gradient too! My cough has all but gone and I have lost 9 lbs. On Thursday at our last session I will be filmed for some new promotional material to encourage others to try the gym, and even heard myself saying yes to an introduction to the local gym where I’ll get a discount and can go exercise with the big boys and girls. I know! Who’d have thunk it?

I’ve made some friends too and you will be delighted to know Jessie now toddles along on the treadmill, Mary had her cataracts done and it was a great success, and Roberta is worried that it might not be a happy Christmas for her. And I can run up the stairs of the rectory and now speak when I reach the top. And I can walk into town, albeit with a scarf over my mouth, without having to stop several times and lean on the wall. Result!

And that, dear reader, is why I haven’t had time to blog for the past six weeks. It has taken quite a chunk out of my diary and I’ve had to work extra hard to catch up at this busy time of year. Will I go on to the ‘real’ gym? Who knows? Watch this space.

old-women-at-the-gym

In which Ruth ponders Lenten fasting

I’m not giving anything up for Lent, you know. Did I mention that already? I will eat chocolate if I feel like it, bread with my soup, the occasional biscuit in company. For anything else is just dieting but kidding on God has something to do with it. So when I came across this poem it made my heart sing.

THE HYMN OF A FAT WOMAN

All of the saints starved themselves.
Not a single fat one.
The words ‘deity’ and ‘diet’ must have come from the same
Latin root.

Those saints must have been thin as knucklebones
or shards of stained
glass or Christ carved
on his cross.

Hard
as pewseats. Brittle
as hair shirts. Women
made from bone, like the ribs that protrude from his wasted
wooden chest. Women consumed
by fervour.

They must have been able to walk three or four abreast
down that straight and oh-so-narrow path.
They must have slipped with ease through the eye
of the needle, leaving the weighty
camels stranded at the city gate.

Within that spare city’s walls,
I do not think I would find anyone like me.

I imagine I will find my kind outside
lolling in the garden
munching on the apples.

Joyce Huff, from Gargoyle magazine (Vol 44)

botero_woman_eating_an_apple

In which Ruth falls silent but two weeks too soon

silenceThe virus came upon me. The no-voice virus came upon me hard. For ten days now I have had no voice. Actually that is not strictly true – the voice has varied from Minnie Mouse on helium to Eartha Kitt (you have to be of a certain age to get these) after a pack of Gitanes to nothing but a squeak or a dry husk. Every morning I have woken and tried it out hopefully to the cats. “Good morning Lucy Pussy!” I scratch. “How’s my lovely Rita Kitten?” I mouth. Nothing. Zilch. Nada.

Of course there is a certain irony here. Over a year ago I had suffered several asthma attacks all winter long for which I was referred for a CT scan which showed up something on my lungs. Scarring, fibrosis, I was told. This meant a referral to the Respiratory Clinic. Now if you are a reader in the UK you will know that referrals on the NHS should happen within 12 weeks. Ha! I laugh at the thought of it. 11 months later I got my appointment with Forth Valley hospital and it was just a few days before the Lost Voice. So as I sat in the Consultant’s office I was able to say that I’ve hardly had any asthma, any colds or coughs, no lung or breathing problems at all, thank you very much. “Jolly good,” said he. “Some COPD, a bit of Fibrosis, some thick bronchi-whatnots so a wee bit of physio and we’ll keep an eye on you every year, dear.” And I was shown the door.

That was merely a week before the voice went. the lungs wearied, my temperature went up, my asthma-cough came back to haunt me at night. Oh pooh. Bloody typical. And the double irony is that I’m due to go on a silent retreat next week! That will be when my voice returns, I bet you!

This enforced silence has made me think, of course. Made me think about how noisy I am. How often I take for granted that I can pick up the phone for a blether, to ask a question, to have a moan. So that has been a salutary lesson for me and I’ve felt oh so lonely at times. What would I have done without Facebook, Twitter, Messaging, texting etc? Drama queen, eh? I wish I could say that I have used this enforced silence for good, of course. For some meditation or holy listening and mindfulness. (The subject of next week’s retreat, ironically.) But no, I have worked on using the time to get lots of computer and office things done. Can you hear my introvert friends scream now, can you?  But let me tell you it was not easy being an extrovert trapped in an introvert’s body. Oh no!

Of course I have much for which to be thankful. My little team who have rallied around and stepped in to say liturgies, preach my sermon, make phone calls on my behalf. Bless them. And yes it is very good for a control freak such as I to have it all taken away from me from time to time. But you know, the timing could have been better, eh?

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In which Ruth gives up the evil weed

Tomorrow it will be five weeks since I last smoked a cigarette. I gave up on the 11 November, Remembrance Sunday. It seemed as good a date as any to remember. smoking2

I first smoked at the age of about 14. My friends and I smoked in the toilets at school, huddled together in one cubicle with our feet up on the seat so they couldn’t be seen below the door. We shared our cheap Sovereign ciggies, bought in packs of 5 or 10. We smoked in our lunch hour wandering round the shops in Marchmont, ready to throw them away if a teacher passed by. We stole our parents’ cigarettes and suffered untipped cigarettes or much stronger brands. We grew into Consulate menthol and finally St Moritz with the gold band and white tip, if we really wanted to impress.  And when my uncle came home from Kuwait he brought with him Sobranie cocktail cigarettes in black and gold, or rainbow colours. They really made you cough and were terribly strong but worth the pain to be seen with such sophisticated smokes.

We smoked because it made us look older and that was what we desperately wanted in those days – to look older. How ironic that cigarettes do indeed make you look older – physically, by wrinkling your skin and your mouth. We wanted to look cool and sophisticated and grown-up and we thought that boys would want to talk to us because we looked so trendy.  And there was always that moment when you had to ask someone for a light and got to cup your hands round his for just a brief moment, while looking up under your eyelashes in a sexy kind of way. That was until the smoke got in your eye and made it water profusely. Not so cool then.

I smoked just like my parents before me, and like my sisters after me. I smoked when I was pregnant because nobody told me it might not be a good thing. They did hint in 1978 at my second pregnancy that it might be an idea to give up because the baby might be smaller, but as Baby #1 had been 8lb 4oz, a smaller baby seemed like rather a good thing really. So I puffed my way through that pregnancy too and indeed Baby #2 was smaller at 7lb 11oz. I could live with that.

And on and on I smoked. When I was a single parent with no money I smoked. I smoked instead of eating. When I was homeless I smoked. Friends bought me cigs and somehow I always managed. I smoked and it calmed me down and slowed my breathing until I felt at peace. When I was anxious I reached for a smoke, and when I was relaxed I smoked. And I had asthma and in winter I coughed as I smoked and that was not good. One year I had pneumonia and could hardly breathe but still I lit one cigarette after another. Friends nagged me and strangers look disapprovingly. But still I smoked.  And the Budgets came and went and cigarettes went up in price but still I smoked.

You see, smokers always seem to have more fun. There was always laughter coming out of the smoking room when we were separated like lepers. Non-smokers would linger at the door, inhaling our secondhand smoke and watching the fun. And we cracked open another bottle and opened the window a little as our eyes started to water with all the fug. We were the rebels, the naughty ones, the ones who had more fun.

Then I became a curate at a cathedral and nobody else smoked and I gave up. For two years I didn’t smoke and I smelled better and other things smelled better and I could walk and climb without stopping to gasp for breath. I had so much more money that I was able to buy nice things for my house, things I could never have afforded before.  Sure, I put on some weight but that soon came off as I walked and walked and walked.

It was all undone though in just a moment. All it took was a crisis, several G&Ts, some bubbly and a social-smoker friend who offered me a fag. And that was the end of that. How lovely it was to smoke again. How comforting to inhale that soothing smoke deep into my lungs, until my breathing slowed and my worries lessened. Any time my anxiety would return all it took was a long white tube and a purple lighter before my blood pressure returned to normal. Who needs Valium?

Smoking 1By now, of course, the Chancellor has really got it in for smokers and you had to be pretty dedicated to be a smoker in the 21st century. Then the Government banned smoking in the workplace and then smoking in bars. We were reduced to huddling in groups in doorways or alleys. The rain fell, the snow fell but still we huddled together, sharing a camaraderie among strangers. Somehow the smokers were not such fun anymore. We had statistics thrown in our faces, lectures from doctors and friends. We had threats of no treatment in hospital for smoking-related illnesses because they were self-inflicted. But still we smoked, defiant and determined.

And we tried to give up secretly. From time to time we put on a patch or sucked a tab or took a mood-altering pill that was meant to help us stop although nobody knew quite why… and do get in touch if you have suicidal thoughts. And we managed a day or two, perhaps a week. And every sweetie that we substituted made us feel even more depressed. Then one night at 10pm we sneaked out to the all night supermarket and bought a wee packed of 10 smokes with the intention of never letting it get back to 20 a day, but within 48 hours it had.

So that, dear reader, was my life until a few weeks ago. That was when I had such a bad cough my asthma started to play up. One dose of antibiotics and steroids didn’t do the trick and the Practice Nurse did a new test of my lung function. “You have the lungs of an 85 year old,” she said. “And the beginnings of COPD.” An 85 year old?! I am 56. And I couldn’t climb one flight of stairs without stopping half way, and coughing at the top. And at night I wheezed as I lay down and in the morning I coughed and coughed. And I went to visit Durham with friends and I couldn’t climb the hills and had to keep stopping and friends walked on.

On 11 November 2012 the time was right. I had my last cigarette and now I live one day at a time. Occasionally I have a puff of an electronic cigarette (melon or spearmint flavour) but no more than about 3 puffs a day. That’s not even one whole cigarette. Some days I don’t use it at all and forget all about it. Those days are getting more frequent. Of course I feel better. I won’t lie and say the cough has gone because it hasn’t. But it is getting better and I know that if I hadn’t given up I would be on my third dose of steroids by now and probably back on the nebuliser, gasping for clean air.

I haven’t noticed that I’m better off financially yet. In fact, I haven’t been able to put the money away because there hasn’t been any. So something would have had to go, I’m guessing. And yes I’ve put on weight. A lot of weight. I have eaten my body weight in Maltesers, in fact. In the past when this happened I’d give up and go back to smoking but this time I can’t. This time I have to keep going because fat women don’t all have 85 year old lungs. And that is reversible.

I still miss them. And I may fall off the wagon again. But please don’t judge me. It is bloody hard and I loved smoking. Whether I love being healthy more remains to be seen.

Blogging and the Dentist

It has been a horrible week. Just horrible. I have done nothing much except take painkillers, sleep and do the bare essentials in parish work. And all because of toothache.  Readers may remember Pedro the gorgeous dentist who I had to leave because he was also a crap dentist. Now we have Vicky, the super-efficient dentist, who scares me a little with her efficient manner. She is a woman who likes to be in control and I suspect gumboils shrink in terror at the merest glance from her. A week ago I took my chronic toothache to her (and why is it always just as the weekend is about to begin that the pain levels rise?) and she removed a large troublesome filling which we suspected was the culprit. Sometimes it is hard to tell where the pain is coming from. On different occasions it seemed to be in my ears, eyes, lower jaw, upper jaw and nose. Anyway, taking the filling out seemed to do the trick. Until the injection wore off, that is, and when the dental surgery was closed for the weekend. Turned out, it was the tooth next to it or the one next to it. As my next appointment is not until next week I thought I’d try and persevere hence the week of painkillers and sleep and no work. (Along with that I also got an infected eye and had to get cream for that and a warning that I may be allergic to Lucy Pussy – oh no!)

How on earth did people manage before there were dentists?  Or did they just go and get it pulled if it gave trouble? I hate toothache and not being able to eat hot or cold or sweet – yeh, what’s that all about? How does it know that things are sweet and therefore nippy? Anyway, back to the tooth tale, I eventually went in yesterday and begged for another emergency appointment and the lovely Vicky decided to remove the filling from the next tooth. I must admit I thought it was the next one along but who’s going to argue with her?  Turns out she was right. Of course. (Although her injection didn’t work and I felt that nerve being poked – four times. Ouch.)

So my day off was spent catching up with some of the work I should have done during the week. Sorry if you haven’t been visited when you thought you ought to have been. Today I’m off to a conference on the Benedictine Spirituality of Work. The good thing is that I can eat sweet things.